It is looking like Emilia is going to pull through. She has been stable all day and her lungs have started to improve. The Dr who was a little bit doubtful yesterday now thinks she has a good chance of making it. The relief we are feeling is immense, but at the same time we know it could change.
Her spirit is so strong, she wants to live!
We gave Eva her second bath today and she loved it! I did it all by myself and felt pretty confident. Then she got cuddles from Jens, they are so cute together. She is now over 1,5 kg :)
tisdag 20 september 2011
måndag 19 september 2011
Update
Emilia is still critically ill but stable. There isn't much change from before except for that the amount of infection in her blood has reduced. She is still getting 100% oxygen and is very fragile. I spent some time tonight talking to her and holding and kissing her little hand. She is so lovely.
Jens held Eva for about two hours. Then we changed her nappy and usually when she lies on her back she has trouble saturating her blood with oxygen. But tonight she was loving it and handled it really well! She spent about 10 minutes kicking out her little legs and stretching her arms whilst me and Jens talked to her and gave her cuddles. It was a really special time.
So now we are back at home. We got a candle after we christened Emilia and we are going to light it tonight and send her lots of positive energy and all of our love.
Jens held Eva for about two hours. Then we changed her nappy and usually when she lies on her back she has trouble saturating her blood with oxygen. But tonight she was loving it and handled it really well! She spent about 10 minutes kicking out her little legs and stretching her arms whilst me and Jens talked to her and gave her cuddles. It was a really special time.
So now we are back at home. We got a candle after we christened Emilia and we are going to light it tonight and send her lots of positive energy and all of our love.
Home
We both feel completely exhausted so have decided to spend the day resting at home. Emilia just needs to rest now. We are meeting the psychologist at 16.00 and after that we will give Eva a bath and hold her for a few hours. Monday morning is not the best time to be there as there is a hive of activity and it is hard to not feel like we are in the way. Should she start to decline again then they will ring us straight away.
I think we were able to sleep so well because the Dr who looked after the twins in the beginning was working last night. She took us straight to Emilia, took her little cover off and started telling us her medical opinions. Emilia was and is very swollen, which is normal and to be expected. She was also very awake so the Dr doubled her amount of morphine so she would be able to relax more. Then she ordered a high concentration of blood platelets. She told us that she thought Emilia was going to survive the infection. Her whole body, from the end of her toes to the tips of her fingers was pink, showing that her blood has managed to circulate despite the assault the infection had taken on her body. What she has and is suffering from is the worst kind of infection that can affect premature and full term babies.
The good news is that she is responding to the urine medicine and is urinating a good amount. She needs to do this to get rid of all the excess water in her body and bring down the swelling. Her infection count had also come down. She is managing to keep her blood pressure and pulse at the right levels. She is still in a critical phase of the infection and the Dr this morning told us that she is going to be ill for at least another 24 hours before we see more improvements. We are still in the danger zone but light can be seen at the end of the tunnel. Me and Jens are clinging onto that.
When we left her she was about to get some sleeping medicine as she is finding it difficult to relax and sleep. Throughout this whole episode she has looked like a beautiful little doll, her face is so perfect, she is so perfect. It has been difficult to really see her features when she was on the cpap machine. Even when she was really bad she was still opening her eyes and holding our fingers, Emilia Cajsa Lindqvist is still very much at large and has a strong will to live. Thank you to everyone who is rooting for her, I am sure it all helps.
So, this has easily been the worst weekend of our lives. I never knew I could feel so sad and helpless or like the world was so unjust. It is just so hard to make any sense of it. Everybody reading this knows that me and Jens are not religious people and being faced with the question about christening our daughter was something we were both unprepared for. At this time she was getting 100% oxygen and her oxygen saturation was around 70%, it should be between 88% and 92%. We knew that if she started to dip that there was nothing more they could do for her. So we decided to go ahead with it, at that point I would have done anything. We were both praying and I have promised God that I will go to church once a month if she survives and that I will give the whole religion thing a chance. The service was super short and at the end of it she fully opened both of her eyes (before she had only opened them slightly) and then her saturation went up to 87%, the highest it had been all day. It was a wonderful experience. Since then, things have only improved. It was really comforting to have Jens' Mum and Dad with us and I know it made them feel a lot better too.
So now we are back to waiting, hoping and praying. Hopefully it is just a matter of time until we are back under the rainbow.
I think we were able to sleep so well because the Dr who looked after the twins in the beginning was working last night. She took us straight to Emilia, took her little cover off and started telling us her medical opinions. Emilia was and is very swollen, which is normal and to be expected. She was also very awake so the Dr doubled her amount of morphine so she would be able to relax more. Then she ordered a high concentration of blood platelets. She told us that she thought Emilia was going to survive the infection. Her whole body, from the end of her toes to the tips of her fingers was pink, showing that her blood has managed to circulate despite the assault the infection had taken on her body. What she has and is suffering from is the worst kind of infection that can affect premature and full term babies.
The good news is that she is responding to the urine medicine and is urinating a good amount. She needs to do this to get rid of all the excess water in her body and bring down the swelling. Her infection count had also come down. She is managing to keep her blood pressure and pulse at the right levels. She is still in a critical phase of the infection and the Dr this morning told us that she is going to be ill for at least another 24 hours before we see more improvements. We are still in the danger zone but light can be seen at the end of the tunnel. Me and Jens are clinging onto that.
When we left her she was about to get some sleeping medicine as she is finding it difficult to relax and sleep. Throughout this whole episode she has looked like a beautiful little doll, her face is so perfect, she is so perfect. It has been difficult to really see her features when she was on the cpap machine. Even when she was really bad she was still opening her eyes and holding our fingers, Emilia Cajsa Lindqvist is still very much at large and has a strong will to live. Thank you to everyone who is rooting for her, I am sure it all helps.
So, this has easily been the worst weekend of our lives. I never knew I could feel so sad and helpless or like the world was so unjust. It is just so hard to make any sense of it. Everybody reading this knows that me and Jens are not religious people and being faced with the question about christening our daughter was something we were both unprepared for. At this time she was getting 100% oxygen and her oxygen saturation was around 70%, it should be between 88% and 92%. We knew that if she started to dip that there was nothing more they could do for her. So we decided to go ahead with it, at that point I would have done anything. We were both praying and I have promised God that I will go to church once a month if she survives and that I will give the whole religion thing a chance. The service was super short and at the end of it she fully opened both of her eyes (before she had only opened them slightly) and then her saturation went up to 87%, the highest it had been all day. It was a wonderful experience. Since then, things have only improved. It was really comforting to have Jens' Mum and Dad with us and I know it made them feel a lot better too.
So now we are back to waiting, hoping and praying. Hopefully it is just a matter of time until we are back under the rainbow.
söndag 18 september 2011
Update
Emilia has shown signs of improvement overnight and is responding to treatment. We have both managed to get some sleep at the hospital overnight and will spend the day with both of our babies.
Eva is doing well.
Eva is doing well.
Critically stable
Emilia is critically stable. She has started to improve slightly, but the odds are stacked against her. We had her christened at 15.30 this afternoon. It was a lovely little service.
We are going to sleep at the hospital tonight.
We are going to sleep at the hospital tonight.
lördag 17 september 2011
fredag 16 september 2011
Critical
Emilia is critically ill. She has developed an infection in her blood, it started yesterday lunchtime. The staff were quick to respond and got her on antibiotics straight away. She became stable quickly, but in the night she has taken a turn for the worse again. We are going to the hospital now with dreads in our stomachs.
Eva is still doing really well.
Eva is still doing really well.
Prenumerera på:
Inlägg (Atom)